Register your interest
A Research Assistant will be in touch to help you decide whether or not you would like to take part
Pancreatic cancer is difficult to diagnose, and many people report that it took a long time to receive their diagnosis. This delay can be distressing, and might also influence how long people live after their diagnosis. The Pancreatic Cancer Pathways to Diagnosis Study (the Pathways Study) aims to talk to people who have been diagnosed with pancreatic cancer to gain a detailed understanding of the ways in which Australians reach their diagnosis. This will help us to develop strategies to help future patients receive their diagnosis quickly.
The specific aims are to:
Participants will be given the option of allowing the research team to access their medical records, but this is not required in order to take part in the QIMR Berghofer Pathways Study
If you have been diagnosed with pancreatic cancer within the past 6 months you would be eligible to take part. If you would like to take part, but you would prefer a family member or friend to answer questions on your behalf, that is also OK.
There are no direct benefits for participants in the Pathways Study, although some people appreciate the opportunity to tell their story and share their experiences. There is also value in feeling that you are helping other people in the future.
There is no payment for taking part in the Pathways Study, but we will offer you a $20 eVoucher as a small thank you for taking the time to help this research.
This project involves completing one questionnaire and taking part in one interview, so the harms are minimal. It is possible that some people might find talking about their journey to diagnosis distressing. We will make sure that participants are aware of support services and, if needed and with permission, we will let participants’ general practitioners know of their need for support.
The study is being led by Professor Rachel Neale at the QIMR Berghofer Medical Research Institute.
There are doctors and scientists participating from Australia and New Zealand. For a full list of investigators please click here.
Further information about the study can be viewed here.
If you are interested in taking part you can: