GenetiQs Project

Genomics has the potential to revolutionise the way health care is delivered. Currently, there are research programs at the state and national level that are enabling the introduction of genomics into Australian healthcare system.

It has been identified that Aboriginal and/or Torres Strait Islander people are at risk of being ‘left out’ of these developments. One reason is that researchers are failing to engage with Indigenous communities due to a lack of awareness on how to conduct genomics research in such settings.

 

We are proud to present Genomic Partnerships: Guidelines for genomic research with Aboriginal and Torres Strait Islander peoples of Queensland.

Our team would like to thank everyone involved, in particular, community, expert stakeholders, and our partners who contributed generously to the discussions that informed the development of this document. Thanks to our funding partners, Queensland Genomics and QIMR Berghofer who provided support and help at every step of the journey.

The Genomic Partnerships document is an important step in a much larger movement that is empowering both the research and Aboriginal and Torres Strait Islander communities to enter into discussion about genomic research. This is the first guideline of its kind, serving to provide practical advice to researchers about the importance of partnering with Aboriginal and Torres Strait Islander peoples to propose, develop and deliver genomics research in Queensland.

Download, use and share to your networks

Please click on icon below to download the Genomic Partnerships document:

If you want a printed copy to be delivered please email: Genetiqs@qimrberghofer.edu.au

For details on the project and its development, please see below.

Follow the progress of the GenetiQs project via the updates below:

Update #1
Update #2
Update #3
Update #4
Update #5
Update #6
Update #7
Update #8
Update #9
Update #10

Our project team is guided by a group of 12 Project Steering Committee (PSC) members comprised of leading investigators, academics, policy, clinicians and researchers who are well regarded for their work in the Indigenous health sector.  The following PSC members regularly meet with our team to guide us in the process of developing this guideline.

  • QIMR Berghofer Medical Research Institute, Mr Gregory Pratt, Manager for Aboriginal and Torres Strait Islander Health Research
  • Queensland Genomic Health Alliance, Dr Nicola Waddell, Head of Medical Genomics at QIMR Berghofer Medical Research Institute
  • James Cook University, Dr Felecia Watkin Lui, Director of Research Education, Indigenous Education & Research Centre;
  • University of Queensland, Dr Maree Toombs, Director of Indigenous Health;
  • Central Queensland University, Professor Roxanne Bainbridge, Director Centre for Indigenous Health Equity Research;
  • Deakin University, Professor Emma Kowal; ARC Future Fellow, Alfred Deakin Institute;
  • University of Southern Queensland, Ms Raelene Ward, Senior Lecturer, School of Nursing and Midwifery;
  • Central Queensland University, Professor Adrian Miller, Pro Vice-Chancellor of Indigenous Engagement and BHP Chair of Indigenous Engagement;
  • Department of Health, Queensland, Dr Daniel Williamson, Manager, Performance and Accountability Team, Aboriginal and Torres Strait Islander Health Branch;
  • Queensland Aboriginal & Islander Health Council (QAIHC), Ms Angela Young, General Manager, Policy;
  • Department of Health, Northern Territory, Dr Sean Taylor, Executive Director Aboriginal and Torres Strait Islander Health Practitioner, Top End Health Service;
  • Apunipima Cape York Council, Mr Paul Stephenson, Chief Executive Officer

Gregory Pratt
Manager for Aboriginal and Torres Strait Islander Health Research

David Whiteman
QIMR Berghofer Deputy Director and
Head of Cancer Control

John Pearson
Head of Genome Informatics

Miranda Vidgen
Research Officer, Medical Genomics

If you have any queries or need more information on the project, please contact the team email address below.

QIMR Berghofer Medical Research Institute
(07) 3845 3883
Genetiqs@qimrberghofer.edu.au

Judy Watson’s Water Memory reflects the many histories of the QIMR Berghofer site, which is partially viewed here in the header and footer of this webpage. The imagery has been inspired by the Traditional Owners of the land—the Aboriginal people who resided on this land—the Turrbal and Jagera people. The Water Memory piece can be viewed in its entirety from the foyer of QIMR Berghofer Medical Research Institute.