Genomic research is helping to identify the causes of diseases, to estimate a person’s risk of disease and to suggest ways to tailor a patient’s treatment and management. This research has the potential to revolutionise healthcare. It is expected that the integration of genomics into healthcare may result in major gains in survival and quality of life.
Currently, the number of Aboriginal and Torres Strait Islander Queenslanders accessing genetic health services is under-represented compared to the whole of population access. With a growing emphasis on the implementation of genomics into healthcare, there is potential that inaction to ensure coordinated care across the primary and specialist service sector will contribute to widening the gap in healthcare access and consequently, health outcomes.
Novel solutions are necessary to support and ensure coordinated care across existing and evolving health services; to ensure quality, equitable and accessible genetic health care services for all Queenslanders.
This Project (Genetic Health Pathways) will build on the work of the Queensland Genomics funded projects:
QIMR Berghofer in collaboration with QAIHC (Queensland Aboriginal and Islander Health Council) and GHQ (Genetic Health Queensland) will facilitate a series of interviews and workshops with ATSICCHOs representatives and community members, as well as patients who have currently being referred to GHQ.
Workshops will be co-facilitated to consult with expert working groups to identify barriers, access, costs, awareness, workforce structures and enablers. Themes, recommendations and discussions arising from workshops/focus groups will be reflected and captured to propose an integrated model for Aboriginal and Torres Strait Islander Queenslanders. The information collected from the workshops will then be used to inform the design of a referral pathway for patients into GHQ.
This project will aim to:
The Project will work with a range of stakeholders and partners to develop and produce a preferred integrated health care model. The project steering committee members represent the following organisations:
Mr Gregory Pratt, Manager of Aboriginal and Torres Strait Islander Research
Ms Victoria Donoghue, Project Officer
If you have any queries or need more information on the project, please contact the Project Officer, Ms Victoria Donoghue on the details below:
Ms Victoria Donoghue