Health Literacy Project
“Aboriginal and Torres Strait Islander people should be aware that this website may contain images, voices or names of deceased persons in photographs, film, audio recordings or printed material.”
Indigenous Genomics Health Literacy Project (IG-HeLP)
The Indigenous Genomics Health Literacy Project (IG-HeLP) is a partnership between QIMR Berghofer and Queensland Genomics (QG), which aims to develop health literacy resources on genomics, genetic testing and precision medicine for Aboriginal and Torres Strait Islander consumers and health workers.
IG-HeLP was derived from the GenetiQs Project community consultations. It hopes to support the equitable delivery of genetic health services by creating resources to aid community health providers and Aboriginal and/or Torres Strait Islander patients to make informed choices when accessing genetic health services.
IG-HeLP will identify the most appropriate resources for communicating genomic information; and develop these resources through a mix of subcontracting and internal processes. The team will work with Queensland Aboriginal and Islander Health Council (QAIHC), Aboriginal and Islander Community Controlled Health Services (AICCHS), Genetic Health Queensland (GHQ) and the community to pilot resources, and source funding for implementation of the recommendations.
IG-HeLP Community Group
IG-HeLP with the help of Queensland Aboriginal and Islander Health Council (QAIHC) and its member networks will recruit a community group to help us develop the resources.
The community group comprising of approximately 12 Aboriginal and/or Torres Strait Islander people from across Queensland will meet in Brisbane for a 2-day workshop in July 2019 to help develop these resources to inform consumers, their families and clinicians about genomic research, genetic counselling/testing and precision medicine.
Aboriginal and Torres Strait Islander
Genomics Community Group
This map and locations are the Aboriginal and/or Torres Strait Islander Genomics Community Group members home towns.
The project team invited Aboriginal and/or Torres Strait Islander community members, to a facilitated 2 day workshop in Brisbane in July 2019. The workshop informed the development of the proposed genomics health literacy resources. Workshop participants are now our community champions to review the resources at the end of 2019, to inform the final version expected to be release in early 2020. The project team will visit Queensland communities to gain feedback and to launch the final versions of the resources.
IG-HeLP in a nutshell
- To consult, engage and partner with communities, health services and consumers to develop and pilot culturally appropriate genomic health literacy materials for community to continue engagement of Aboriginal and Torres Strait Islander people for clinical genomics and precision medicine.
- Deliverables – This project will develop health literacy resources that aid Aboriginal and/or Torres Strait Islander Queenslanders to access resources relating to genomics, genetic testing and precision medicine
- Informed choices when accessing genetic services, such as genetic testing and counselling
- Informed choices when accessing precision medicine
- Increased uptake of genetic services and precision medicine
- Improved health/genomic literacy
MEET THE PROJECT TEAM
Manager for Aboriginal and Torres Strait Islander Health Research
Aboriginal and Torres
Strait Islander Health Research
If you have any queries or need more information on the project, please feel free to contact Cath Brown at the GenetiQs team email address below.
Ms Cath Brown
QIMR Berghofer Medical Research Institute
(07) 3845 3883
Judy Watson's Water Memory reflects the many histories of the QIMR Berghofer site, which is partially viewed here in the header and footer of this webpage. The imagery has been inspired by the Traditional Owners of the land—the Aboriginal people who resided on this land—the Turrbal and Jagera people. The Water Memory piece can be viewed in its entirety from the foyer of QIMR Berghofer Medical Research Institute.